Jean Phillips-Martinsson obituary
Jean Phillips-Martinsson, a British woman living in Sweden, founded an international organization to support research and aid for Prader-Willi syndrome after her son was diagnosed with the condition. She worked to connect families and expand awareness globally. She passed away in 2026 at the age of 56.
Jean Phillips-Martinsson started an international organization to support research and aid for Prader-Willi syndrome after her son was diagnosed. She worked to connect families and expand awareness globally.
Her work helped connect families affected by a rare condition and advanced research and support for those living with Prader-Willi syndrome.
Her story highlights the power of personal experience to drive global change and support for rare conditions, offering hope and connection to others in similar situations.
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